The #OwnMyHealthRecord Twitter Chat was a focused discussion on what a health record is, how it is used, and why it is important. We heard from experts, partners, and advocates about how a health record supports patient rights and access to things needed now, such as a flu shot. We have compiled all of the resources shared during the discussion to help guide others in owning their health record!
Updating Your Health Record
- Help in the transition from pediatric to adult health care: https://gottransition.org/parents-caregivers/
- Got Transition medical summary card: https://t.co/eY7Ij3YTvn?amp=1
- Learn about your rights related to accessing your health record: https://hhs.gov/hipaa/for-individuals/right-to-access/index.html…
- Great video https://youtu.be/3WsRzlutBQk from http://HealthIT.gov on your rights to your health information.
- How to access your health record: https://healthit.gov/how-to-get-your-health-record/
- You can print out your medical summary and keep it with you, or you can keep it on your computer. You can also keep part of your MedicalID on your smartphone https://gottransition.org/resource/?setting-up-medical-id-smartphones…
- How to keep your health information private and secure: https://healthit.gov/sites/default/files/how_to_keep_your_health_information_private_and_secure.pdf
- Guide to Getting & Using Your Health Records: https://healthit.gov/how-to-get-your-health-record/
Healthcare Transition – From Pediatric to Adult Healthcare
- Help in the transition from pediatric to adult health care: https://gottransition.org/parents-caregivers/
- Nemours Children’s Health System “Navigating the Health Care System” toolkit (for general youth, but still helpful for teaching health advocacy and communication) https://movinghealthcareupstream.org/navigating-the-health-care-system/
- Learn more about having accurate health records to help you transition from pediatric care to an adult health provider: https://gottransition.org/six-core-elements/implementation.cfm…
- Understanding your health and medications for youth/young adults transitioning to adult health care: https://gottransition.org/6ce/?leaving-readiness-assessment-youth…
Inclusive Health for Those with Disabilities
- Information on inclusive health for those with disabilities: https://t.co/rSSMw2akSL?amp=1
- Oregon Health Sciences University (OHSU)’s Taking Charge of My Healthcare” toolkit for people with disabilities that helps with keeping health info current and other tips for healthcare appointments: https://t.co/JIs4Mufpkr?amp=1
- Learn more on welcoming/including those with disabilities to your practice: https://t.co/Ea7fwfzlb9?amp=1
- Disability and health information for healthcare providers: https://t.co/4j9kduz7VH?amp=1
- Understanding your rights in healthcare settings for people with disabilities: https://ucucedd.org/wp-content/uploads/2020/04/COVID-19-Fact-sheet-for-PWD.pdf…
- AUCD’s Access to Healthcare sheet helps healthcare providers see that people with disabilities are in every community & supports conversations on healthcare transition, setting time to review/update, use of Telehealth: https://nationalcenterdph.org/health-care-access-fact-sheet/…
- Best practice factsheet for doctors to help them provide great care to patients with disabilities: https://ucucedd.org/wp-content/uploads/2020/04/Center-for-Dignity-in-Health-Care-fact-sheet-on-rights-for-people-with-disabilities.pdf…
- Having accurate health records helps people with disabilities share their health information with people who they trust and/or who help them with medical decision making. Learn more about supported decision making at http://supporteddecisionmaking.org
- Health records can provide info about your disability status and type. CDC uses information on disability status to estimate the number of people in the U.S. and by state who have a disability. https://bit.ly/CDC_DHDS
Vaccination Information
- Learn more about getting your flu shot at https://cdc.gov/flu/season/protect-your-health.html….
- CDC gives you reminders about appointments, needed check-ups and immunizations: https://cdc.gov/vaccines/adults/rec-vac/index.html…
- Disability and health information for healthcare providers: https://t.co/4j9kduz7VH?amp=1
- Understanding your rights in healthcare settings for people with disabilities: https://ucucedd.org/wp-content/uploads/2020/04/COVID-19-Fact-sheet-for-PWD.pdf…
- AUCD’s Access to Healthcare sheet helps healthcare providers see that people with disabilities are in every community & supports conversations on healthcare transition, setting time to review/update, use of Telehealth: https://nationalcenterdph.org/health-care-access-fact-sheet/…
- Best practice factsheet for doctors to help them provide great care to patients with disabilities: https://ucucedd.org/wp-content/uploads/2020/04/Center-for-Dignity-in-Health-Care-fact-sheet-on-rights-for-people-with-disabilities.pdf…