When you make your data accessible, you make it easy for people to understand! Use this document to make your data presentations more accessible, specific for different audiences, and effectively presented. Special thanks to the Disability Data to Action Community of Practice for their contributions. Below you can find a number of resources to help you begin to present and use your disability data effectively.
Sources that are useful for identifying people with IDD
- Healthcare Cost and Utilization Project
- Transformed Medicaid Statistical Information System (T-MSIS)
- County Health Rankings
- Examples of data sources for DH Objectives
- https://www.cdc.gov/ncbddd/disabilityandhealth/dhds/getting-started.html
- An archived training on DHDS is available at: https://www.youtube.com/watch?v=B-mTFRnlPCE
- https://www.cdc.gov/ncbddd/disabilityandhealth/impacts/index.html
- Census data resource from RTC: (Rural) http://ruralinstitute.umt.edu/366-rtc-rural-map-monday
- Missouri State Profile: http://rtc.ruralinstitute.umt.edu/missouri-state-profile/
- ILRU Directory of Centers for Independent Living: https://www.ilru.org/projects/cil-net/cil-center-and-association-directory-results/MO
- https://www.hcup-us.ahrq.gov/databases.jsp
- Rates of disability from ACS –http://rtc.ruralinstitute.umt.edu/community-participation-independent-living/maps/
- http://rtc.ruralinstitute.umt.edu/covid-19-increased-threat-rural-institutions/ – Showing how disability impacts your community and the rate of individuals that are disabled can support disability inclusion to your audience or as you share with partners
Publications and briefs on data and individuals with disabilities
- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5477666/
Kaiser Family Foundation Brief: http://files.kff.org/attachment/Issue-Brief-Medicaid-Home-and-Community-Based-Services-Enrollment-and-Spending - The AMCHP 2020 Census package: http://www.amchp.org/Policy-Advocacy/health-reform/resources/Pages/default.aspx
- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4355692/
- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4355692/
Policy and Disability Inclusion
- http://www.advancingstates.org/sites/nasuad/files/Issue-Brief-Key-State-Policy-Choices-About-Medicaid-Home-and-Community-Based-Services.pdf
- 10 Action Steps to Include People with Disabilities in Public Health Programs – https://journals.sagepub.com/doi/pdf/10.1177/1524839918788578
- Foundational Principles for Sustainable Inclusion of People with Intellectual Disability
- National Commission for Health Education Credentialing – Those that are CHES or MCHES may be great allies in terms of creating an adapting materials and efforts from a communication perspective
- https://www.changelabsolutions.org/sites/default/files/2020-06/Equitable_Enforcement_to_Achieve_Health_Equity-GUIDE-ACCESSIBLE_FINAL_20200610.pdf
- https://www.aisp.upenn.edu/wp-content/uploads/2020/06/AISP-Toolkit_5.27.20.pdf
Disability as a Demographic
- https://www.health.ny.gov/statistics/brfss/reports/docs/1918_brfss_arthritis.pdf
- https://www.health.ny.gov/statistics/brfss/reports/docs/1916_brfss_diabetes.pdf
- https://aspe.hhs.gov/basic-report/hhs-implementation-guidance-data-collection-standards-race-ethnicity-sex-primary-language-and-disability-status
Tailoring to Your Audience
- Nancy Durante (Has a background in marketing and gives effective information on quickly explaining the data based on what matters to each target audience) – https://www.duarte.com/datastory/
- Analytics Storytelling for Impact (EdX tool): https://www.edx.org/course/analytics-storytelling-for-impact-2
- Stephanie Evergreen (Examines data from a public health perspective and discusses being more intentional for different target audiences) – https://stephanieevergreen.com/
- Free tool: http://stephanieevergreen.com/wp-content/uploads/2019/06/EvergreenDataWorkshopPacket.pdf
Data Presentation Options
- Present Your Data like a Pro
- Infogram.com – useful for creating visually relevant infographics, pictorial graphs (free and paid version)
- https://www.canva.com/create/infographics/
- Presenting Data While Working from Home: https://depictdatastudio.com/presenting-data-while-working-remotely-audio-lighting-and-speaking-tips/
- Social Stories: https://nationalautismassociation.org/wp-content/uploads/2020/03/WhatsCOVID-19.pdf
- https://carolgraysocialstories.com/social-stories/what-is-it/
- Infographic developed in Ohio that conveyed negative connotations around nutrition and physical activity: https://www.ohsu.edu/oregon-office-on-disability-and-health/oregon-disability-health-data-and-statistics
- Vermont developed a disability and health data pages report in collaboration with some of our Chronic Disease and Disability advisory group members (including self-advocates). This was a whole new way of formatting compared to what the Vermont Department of Health has done with other data report templates: https://www.healthvermont.gov/sites/default/files/documents/pdf/DisabilityDataPages_AccessibleVersion.pdf
- https://www.health.ny.gov/publications/0970.pdf
- https://dphhs.mt.gov/Portals/85/publichealth/ChronicDisease/PHSD%20Community%20Guide%202019.pdf?ver=2020-01-17-110227-953
Accessibility Features
- Visualization tools for blind people using multiple modalities – http://www.dcs.gla.ac.uk/~stephen/papers/disability_and_rehab_technology.pdf
- Resource for adding alt text – https://accessibility.umn.edu/core-skills/alt-text
- training on the UM website is orientation for MTDH GRAs – https://www.umt.edu/accessibility/
- https://colororacle.org/ and https://webaim.org/resources/contrastchecker/ – can be great to check color contrast
- Accessibility considerations in data visualization design – https://keen.io/blog/accessibility-in-data-vis/
- Nonvisual Desktop Access is a free, open-source, portable screen reader for Microsoft Windows – https://www.nvaccess.org/download/
- P.O.U.R. Standard: https://www.w3.org/TR/WCAG20/
- https://www.w3.org/TR/UNDERSTANDING-WCAG20/intro.html#introduction-fourprincs-head
- https://www.pinterest.com/sayitwithsymbols/
- Plain Language Checklist
- Up Goer Five